I thought my mother was crazy. For the last three days, she kept driving me back to Children's Hospital. Monday was bloodwork at the lab, Tuesday was Dr. Crow, and Wednesday was my CF appt. You'd think that doing all of this in one day would be easier, but it is actually the opposite. The lab never gets the blood processed in time, appointments are always behind, and I get hungry and cranky.
The good news....
Dr. Crow likes my progress. He is lowering my IV fluids from 12 hrs/day to 10 hrs/day. Mom and Dad run my fluids from 9p-7a.
The CF drs want Mom to "try" to give me my medicine by mouth with applesauce. This will surely please Great Grandma Rosie. Rosie does not like to even think about putting it in my feeding tube.
Everyone said to keep up the good work.
No comments:
Post a Comment