looking around

eating my arm

holding up my cheeks....

Dr. Visits

I thought my mother was crazy. For the last three days, she kept driving me back to Children's Hospital. Monday was bloodwork at the lab, Tuesday was Dr. Crow, and Wednesday was my CF appt. You'd think that doing all of this in one day would be easier, but it is actually the opposite. The lab never gets the blood processed in time, appointments are always behind, and I get hungry and cranky.

The good news....
Dr. Crow likes my progress. He is lowering my IV fluids from 12 hrs/day to 10 hrs/day. Mom and Dad run my fluids from 9p-7a.

The CF drs want Mom to "try" to give me my medicine by mouth with applesauce. This will surely please Great Grandma Rosie. Rosie does not like to even think about putting it in my feeding tube.

Everyone said to keep up the good work.

Other Blogs

I made my buddy's blog today. "Uncle Rob" keeps tabs on me and has kept his circle of friends updated on my whereabouts. He took this picture of me at the beginning of the week. Check out Uncle Rob at http://robthomas.blogspot.com

My First Bath

Lots to talk about...

I am 7 months old today!!!! On the medical end of things...I launched a personal recall on the broviac system. I never really liked them to begin with and those silly doctors just kept putting them back in me. Did a drive by through the hospital and picked up a med. port for myself. The parents think that it is more "Timmy proof" meaning it might keep me out of the hospital. With this device, if I decide to pull it out, they just hook it right back up. The majority of the med. port is implanted under the skin and all the parents need to do is access the device. Sounds kinda complicated, huh? Don't worry....they can handle it.

Also, Dr. Crow has dropped my TPN IV fluids down to 6 days a week. I will be off of it from Monday mornings until Tues evenings!!! During this time, there is nothing on the surface of the skin to pull on...no tubes, no dressings, no nothing. It's Monday afternoon right now and I am a real baby with no parts and pieces to worry about.

THE BIG NEWS.......I'm getting a bath tonight. A real bath. Submerge and soak my butt in the water bath. In my 7 months, this will be my first real baby bath....stay tuned for some pictures to come!

This picture is dedicated to Kristin at the NICU...wanted to show her that my hair is growing back.

A Milestone

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Mom caught me smiling on Sunday. I haven't smiled for my parents until this point. Call me a softie....but I couldn't help it...there I was snuggling with Dad and Mom had to get all cutesie on me...and I lost all control....and smiled. Don't tell anyone, it'll ruin my image.