Saturday, May 23, 2009

Holiday Weekend

Mom and I at Dad's softball game

So far, I have had a great holiday weekend. I am feeling better and school on Friday was a good time. I took a quick nap for Mom at 5pm, so we were able to go to Dad's softball game at 7pm. We stayed for almost a whole game and came home to bath, eat and crash out at 9:30pm. Saturday, Grandma Lyla came over in the morning so that Mom and Dad could work on chores. Dad spent the day burning brush, wiring the electric for the hot tub, and hanging flower boxes. Mom planted some vegetables and flowers, trimmed the bushes, and finished staining the front porch. The gas company also came by to read the meter. Simple, huh? That is until they discover that it is leaking gas!!! They shut the gas off, called the repair guy, and a couple hrs later everything was back up and running. The guy was nice enough to install the remote reader so that Mom doesn't have to let any more creepy people in the house to read the meter. During all of this excitement, grandma and I played and I got a nice, relaxing stroller ride.

Sunday, May 17, 2009

Timmy's Team= $2,000 and The Community=$106,000

gathering for a quick photo before the walk

Kisha and her husband at the halfway point

many walkers lined the streets and stopped traffic for a great cause ....CF!


Our final totals won't be in for a couple weeks, but we met and surpassed our goal of $1,500. They have to combine the internet donations with all of the money brought to the walk and then post it on the website. The Hardesty Park walk collected $106,000! Wow! The weather was nice and it was a great day. Thank you to everyone that donated and thank you to those that walked with Mom and Dad.

Friday, May 15, 2009

It's My Weekend!



Great Strides
2009

Sunday is the walk...
Are you coming?
Click on the Great Strides link. We are approaching the $2,000 mark!
Here is an updated list of my team:
Mom
Dad
Grandma Lyla
Chris Hawley
Mallory Hawley
Nicole Dejacimo
Carli Scott
David and Jennifer Minney
Katie Middendorf
Katie Gregory
Kisha Thomas
Sedonia Poole
Sarah Campbell
Patti Kraynack
Angie Brinson

Saturday, May 2, 2009

Busy Day


Today was packed full of things to do. Early this morning, Dad gave away our hot tub. Au revoir icky tub! Mom and Dad are having a new one delivered on Wed. We then went to Tyler's soccer game. Other than having to eat lunch and change a diaper next to the field, things went pretty well. They lost, but were still treated to ice cream. After that, we drove out to Aunt DeDe's house for a wedding. I got in a nap, did a couple meet-and-greets, and hung out with all the relatives. Arrived back home about 7:30pm for a bath, meal, and then to bed.

The Great Strides Walk is in two weeks. Will you be there? We have many people signed up to walk and have already raised over $1,000.00. Click on the link at the top right of the blog to register or donate.
Here is a list of people committed to walking on Timmy's Team:
Mom
Dad
Grandma Lyla
Chris Hawley-freind of family
Mallory Hawley-friend of family
Nicole Dejacimo-Mom's friend
Carli Scott-Calico teacher
David and Jennifer Minney-Calico Social Worker
Katie Middendorf-Stroller Fit Mom
Katie Gregory-Calico nurse
Kisha Thomas-Calico teacher

Thursday, April 16, 2009

See Ya Later Alligator



I had a Dr. Crow appt today. Dr. Crow is a pediatric surgeon at Children's for those of you who can't keep up with my people. Since leaving the NICU two years ago this May, I have gone for monthly bloodwork and monthly appts to see Dr. Crow. At this appt, I weighed in at an amazing 18 lbs 3 oz. I have flirted with the 18lb mark before, but I have never surpassed it. Dr. Crow said that the bloodwork looks great (It tells him if my body is absorbing the nutrients and working properly.) He said he was impressed and that he was confident that I am A-OK....and that there is no more bloodwork! No more monthly bloodwork! He also said to not come back until July! So, in honor of Dr. Crow.....see ya later alligator. We won't miss our monthly visits. I am posting this picture to show you how much I have grown. No commenting on my non-coordinating outfit.....I came home from school looking like this.

Sunday, April 12, 2009

Happy Jelly Beans and Easter Eggs


Happy Easter Everyone! Although I'm not up to enjoying the ritual of eating chocolate bunnies and such, I still had a good time enjoying some of Mom's mashed potatoes and Grandma Lyla's upside down pineapple cake. This picture is from my first Easter. Nurse Kathy bought (I mean, the Easter Bunny) the bunny for me.

In a little over one month, the annual CF walk will take place. Timmy's Team raised over $1700 last year during the Great Strides Walk. This must be our magic number because Mom's school raised the same amount for Akron Children's Hospital this year. Invites and info sheets are out in the mail this week. Many of you read this blog and we never hear from you....so if you don't receive a personal invite from Mom or Dad, consider this your invitation. Click on the top right corner of this blog and it will take you to the Great Strides Site. Here you can register to walk or make an online donation. I am not allowed to attend because CF patients are not allowed to "hang out" together, but supporting Mom and Dad would be great!