It's My Weekend!

Great Strides
2009

Sunday is the walk...
Are you coming?
Click on the Great Strides link. We are approaching the $2,000 mark!
Here is an updated list of my team:
Mom
Dad
Grandma Lyla
Chris Hawley
Mallory Hawley
Nicole Dejacimo
Carli Scott
David and Jennifer Minney
Katie Middendorf
Katie Gregory
Kisha Thomas
Sedonia Poole
Sarah Campbell
Patti Kraynack
Angie Brinson

Busy Day

Today was packed full of things to do. Early this morning, Dad gave away our hot tub. Au revoir icky tub! Mom and Dad are having a new one delivered on Wed. We then went to Tyler's soccer game. Other than having to eat lunch and change a diaper next to the field, things went pretty well. They lost, but were still treated to ice cream. After that, we drove out to Aunt DeDe's house for a wedding. I got in a nap, did a couple meet-and-greets, and hung out with all the relatives. Arrived back home about 7:30pm for a bath, meal, and then to bed.

The Great Strides Walk is in two weeks. Will you be there? We have many people signed up to walk and have already raised over $1,000.00. Click on the link at the top right of the blog to register or donate.
Here is a list of people committed to walking on Timmy's Team:
Mom
Dad
Grandma Lyla
Chris Hawley-freind of family
Mallory Hawley-friend of family
Nicole Dejacimo-Mom's friend
Carli Scott-Calico teacher
David and Jennifer Minney-Calico Social Worker
Katie Middendorf-Stroller Fit Mom
Katie Gregory-Calico nurse
Kisha Thomas-Calico teacher

See Ya Later Alligator

I had a Dr. Crow appt today. Dr. Crow is a pediatric surgeon at Children's for those of you who can't keep up with my people. Since leaving the NICU two years ago this May, I have gone for monthly bloodwork and monthly appts to see Dr. Crow. At this appt, I weighed in at an amazing 18 lbs 3 oz. I have flirted with the 18lb mark before, but I have never surpassed it. Dr. Crow said that the bloodwork looks great (It tells him if my body is absorbing the nutrients and working properly.) He said he was impressed and that he was confident that I am A-OK....and that there is no more bloodwork! No more monthly bloodwork! He also said to not come back until July! So, in honor of Dr. Crow.....see ya later alligator. We won't miss our monthly visits. I am posting this picture to show you how much I have grown. No commenting on my non-coordinating outfit.....I came home from school looking like this.

Happy Jelly Beans and Easter Eggs

Happy Easter Everyone! Although I'm not up to enjoying the ritual of eating chocolate bunnies and such, I still had a good time enjoying some of Mom's mashed potatoes and Grandma Lyla's upside down pineapple cake. This picture is from my first Easter. Nurse Kathy bought (I mean, the Easter Bunny) the bunny for me.

In a little over one month, the annual CF walk will take place. Timmy's Team raised over $1700 last year during the Great Strides Walk. This must be our magic number because Mom's school raised the same amount for Akron Children's Hospital this year. Invites and info sheets are out in the mail this week. Many of you read this blog and we never hear from you....so if you don't receive a personal invite from Mom or Dad, consider this your invitation. Click on the top right corner of this blog and it will take you to the Great Strides Site. Here you can register to walk or make an online donation. I am not allowed to attend because CF patients are not allowed to "hang out" together, but supporting Mom and Dad would be great!

Watch Out World, I'm Starting To Move

Never, ever, ever shake a baby...unless they have CF.

This weekend "The Vest" arrived. What is "The Vest" you ask? Well, for starters, it gets the THE in its title, just like daddy would say THE Ohio State University. It is that important. The Vest is a vest that contains air pockets. These air pockets fill with air when connected to two hoses. The hoses receive air blown at various intensities, patterns, and speeds by a little machine the size of a 80's boom box. The Vest replaces all of the PD that Mom and Dad would do at random times throughout my day. PD was the hand-clapping to my front and back sides of my lungs to help break up any mucous that would get stuck and risk infection. The Vest is the price of a vehicle and is graciously paid for by our three insurance plans. We'll post a picture of this soon !

Cheese Puffs Anyone?

My speech therapist suggested that I try some processed, not really cheese, cheese puffs. Her idea is that the melt in your mouth, easy to bite, tasty item would encourage me to chew. Since my diet still consists of Stage 2 babyfood, chewing is not really necessary yet. I agree, they were pretty good !
This past week, I traveled to the CF clinic for the monthly appt and to see Dr. Crow. Both went well. Daddy got to experience positive compliments from Dr. Crow, which we don't seem to get very often. He seems to be the "ok, but......" doctor on my list of doctor people. He also said that I had perfect bloodwork and he didn't expect that going cold turkey off of my IV treatments. Dr Crow said to not come back for two months, instead of one!!! Yeah ! Maybe we should send him flowers!